SECONDARY CONDITIONS—General Information

 

Aging

Arthritis

Circulatory Problems

Depression

Diabetes

Fatigue

General Overview

Heart Disease

High Blood Pressure

Menopause

Osteoporosis

Overweight and Obesity

Pain

Respiratory Problems

Sleep Disturbance

Stress

Substance Abuse

Weakness

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In general, the average number of secondary conditions in one study of women with physical disabilities was 13 per woman, 5 of which were rated as severe or chronic.

Secondary conditions have been defined as “Those physical, medical, cognitive, emotional, or psychosocial consequences to which persons with disabilities are more susceptible by virtue of an underlying condition, including adverse outcomes in health, wellness, participation, and quality of life” (Hough, 1999, p. 186).  Although some secondary conditions can be prevented or decreased by a combination of health maintenance practices, removal of environmental barriers, and improved access to effective medical care, others are inevitable components of certain types of disabilities and can be managed but not prevented. Some of the more common secondary conditions include depression, hypertension, chronic pain, skin sores, fractures, contractures, urinary tract infections, respiratory infections, unwanted weight gain, excessive fatigue, and social isolation (Simeonsson & McDevitt, 1999 book). 

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The health problems associated with aging occur much earlier in women with physical disabilities than non-disabled women.

Women aging with physical disabilities constitute one of the most seriously disadvantaged and rapidly growing segments of the population of the United States.  Those aging with severe disabilities differ dramatically on many dimensions from women of the same age. 

            Dr. Margaret Nosek, Executive Director of the Center for Research on Women with Disabilities, voiced the concern of many others when she said, “…as I look forward in my life as a woman aging with a disability, I am terrified. The odds are seriously stacked against me. I have little hope of enjoying the benefits of my hard work in a retirement of healthy peace and comfort.… As I study the lot of my sisters aging with disability around the country, I see that the rising tide of social and medical progress has not raised our ship along with the others. The vista of our future is not a positive one.”

·        People with physical disabilities, even those with severe physical disabilities, are living longer lives and joining the rapidly growing population of persons aging in the US.

·        Approximately 40% of women 65 years or older have at least one functional limitation. Thus, aging with a physical disability is clearly a woman’s health issue.  

·        National data revealed that older women with three or more physical limitations differed dramatically from women with no limitations in the following important ways:

o       Social situation (e.g., less likely to be married, more likely to be living alone),

o       Health conditions (e.g., more likely to have hypertension and depression),

o       Socioeconomic position (e.g., less likely to be employed, lower levels of education, more likely to be living in poverty), and

o       Access or utilization of health care services (e.g., less likely to have private health insurance, less likely to receive regular mammograms and pelvic exams).

·        Among the challenges that exist for women aging with long-term physical disabilities is the onset of new health problems and the increase in functional impairments.

o       Persons with disabilities may experience aging-related health conditions earlier than those without disabilities, a phenomenon referred to as “accelerated aging”. Aging-related secondary conditions may occur as early as the 30’s and 40’s, thus potentially adding to the challenge of meeting mid-life role expectations. 

o       The secondary conditions experienced by people aging with long-term physical disabilities are thought to be caused by four factors:

§         Overuse of an already weakened neuromuscular system (e.g., Turk, et al,, 1995).

§         Underuse or misuse of the neuromuscular system as a result of problems with gait and mobility or deconditioning (e.g., Krause, 1996)

§          Complications resulting from the original injury, disease, or treatment received(Treischmann, 1987)

§         Poor coping techniques and  lifestyle  behaviors 

§         Environmental and attitudinal barriers that limit access and/or opportunities for social participation or health promoting activitie (e.g., DeJong, 1995; Zola, 1993).

o       Women with physical disabilities experience a number of specific secondary conditions that are believed to worsen with age including: a) hypertension, b) nervous system disorders, such as carpal tunnel syndrome, resulting from years of using manual wheelchairs, c) respiratory problems that may become more life threatening with muscular weakness, d) genitourinary problems resulting from years of infrequent urination or bladder management programs, e) increased risk of pressure ulcers due to thinning skin, and f) diminished physical and social functioning due to increased muscle weakness.  Other examples of secondary conditions anticipated to increase in frequency or severity with increasing age include: osteoporosis; endocrine disorders, such as diabetes; pervasive fatigue; obesity or weight management difficulties; and problems with immune function.

o       Prevention of secondary conditions has become a major public health goal incorporated into Healthy People 2010.  Several researchers have argued that the following are needed to reduce the risk of aging-related secondary conditions:

§         Preventive and assistive technology services provided at an earlier age,

§         Health care providers who are more knowledgeable about aging-related health risks for persons with disabilities,

§         Rehabilitation services on a continual, as-needed, basis (not just post-acute phase), and

§         Accessible health promotion programs.

·        Women aging with long-term physical disabilities may need additional assistance from family and friends as they age and potentially face increasing levels of impairment; yet this increasing need may arise at the same time that sources of support are aging and losing functioning themselves.

o       Tangible support is often provided by individuals of the same age or older who may be facing aging-related health changes themselves.  Informal care assistance can be particularly problematic for women with disabilities because they typically spend more years in a disabled state and are likely to spend more of those years without a spouse.  Older women with physical disabilities are more likely than men to report having unmet needs for personal assistance with activities of daily living, and they also make up a far greater proportion of nursing home residents

o       Women with physical disabilities are more vulnerable to disruption in their social networks.  Nearly a fourth of older women with moderate to severe disabilities do not visit with anyone outside their household in a typical week .

·        Although there is a large literature on the development of physical disabilities late in life, the literature on aging with a long-term physical disability is relatively small.

o       Current theories of aging do not directly address the experience of persons aging with a long-term physical disability. 

o       Researchers have often intentionally or unintentionally excluded persons with physical disability from their samples. 

·        In addition to the great need for research on women aging with long-term or life-long physical disability, health promotion programs for women aging with a disability are needed to help address the growing health needs of this population.  A few such studies have recently been funded, including a NIDRR-funded health promotion program for women with physical disabilities currently in progress at CROWD. 

·        The population of people aging with an early-onset physical disability is not large, but the population is anticipated to grow and to have an impact on the field of gerontology and the practice of aging service providers. 

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Although arthritis is the most common primary disabling condition among women, it is also a serious secondary condition that can result, for example, from overuse of certain joints in walking with crutches or pushing a wheelchair.

·        Arthritis is one of the most common chronic health conditions in the US, affecting more than 15% of the total US population.  Osteoarthritis, called the “wear and tear” arthritis, is the most common form of arthritis. 

o       It is a chronic disease affecting synovial joints, particularly large weight-bearing joints.

o       The incidence of osteoarthritis increases with age with nearly 100% of both males and females showing signs of osteoarthritis by age 75.

·        Osteoarthritis is a secondary condition that commonly develops as people age with an underlying primary disability.  Like other secondary conditions, if left undetected and untreated, it can result in secondary functional limitation or disability.

·        In one survey of secondary health conditions in women with physical disabilities, 66% reported experiencing a limitation due to arthritis in the past 3 months.  In fact, arthritis ranked 2nd in terms of severity on a list of 43 secondary and other health conditions.

·        A study conducted to determine which secondary conditions cause the most limitation for persons with disabilities found that 42% of the persons surveyed reported that arthritis had been a problem for them in the past year (arthritis was not the primary condition).  In this study, arthritis was 16th in a list of 40 secondary health conditions in terms of severity.

·        Another recent study of women with functional limitations reported that 37% indicated that they experienced arthritis secondary to their primary disability.

·        Among the causes of secondary osteoarthritis that have been identified are previous rheumatoid arthritis, underlying orthopedic disorders or conditions affecting normal mobility, and previous trauma. 

·        Some investigators working with persons with cerebral palsy or spina bifida have discussed the contribution of microtrauma that occurs from walking on hips that have abnormal biomechanics.

·        Among persons with lower limb impairment, osteoarthritis of the upper extremities has been associated with long-term manual wheelchair use.

·        Overweight and obesity, known to be highly prevalent in women with physical disabilities, are also known to contribute to osteoarthritis.

·        Osteoarthritis as a secondary condition is anticipated to increase as people are living longer with primary physical disabilities.

·        Treatment of osteoarthritis as a secondary condition is important in order to relieve pain and reduce additional disability, but prevention also needs to be emphasized.  While arthritis was not even mentioned in earlier versions of Healthy People, there are now a number of arthritis objectives, included an objective related to prevention, in Healthy People 2010.  It could be argued that prevention efforts are even more important for persons with life-long disabilities who may experience the disabling effects of arthritis at an even earlier age.

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Circulatory problems, such as swollen feet, are very common among women with mobility impairments.

·        Circulatory problems can be caused by a broad array of disorders such as high cholesterol, high blood pressure, peripheral artery and venous system disorders, vasomotor instability, varicose veins, deep-vein thrombosis, blood clots, phlebitis, Raynaud's phenomenon, temporal arteritis as well as atherosclerosis.  These disorders can create serious problems as secondary conditions among women with disabilities.

·        According to the preliminary findings of a study on the cost of secondary conditions among women with physical disabilities (n=443), the majority (60%) reported problems with circulation.

·        In a recent survey of secondary health conditions in 443 women with physical disabilities, 60% reported experiencing a limitation due to circulatory problems in the past 3 months.  In fact, these problems ranked 5th in terms of severity on a list of 43 secondary and other health conditions.

·        Poor circulation combined with immobility may put people more at risk for the development of bed sores.

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Women with physical disabilities have substantially higher rates of depression than non-disabled women.

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Although not as common as other conditions, diabetes is the most troublesome secondary condition for women with physical disabilities.

·        Rates of disability are substantially higher among persons with diabetes than among persons without this disease.

·        One study reported 65% percent of the people with diabetes attributed their physical limitations to diabetes with 35% attributing their physical limitations to other causes (diabetes as a secondary condition)

·        Preliminary findings from another study found 30-35% of their sample of 443 women with physical disabilities as having diabetes as a secondary condition. 

·        Diabetes is highly correlated with lack of mobility, potentially putting women with disabilities at a higher risk for developing diabetes.

·        Another study identified rates of physical limitations for people with diabetes as higher among women than among men, and higher among blacks than among whites.  In 1996, 39% of person’s with diabetes reported physical limitations when attempting major activities; 23% reported being physically unable to perform major activities.

·        The consequences of the coexistence of diabetes and disability include increased use of health care services, unemployment, work absenteeism, and decreased quality of life. 

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The most common and troublesome secondary condition reported by women with physical disabilities is fatigue.

·        Fatigue is a secondary condition affecting many women with physical disabilities and chronic health conditions.  Fatigue was the most frequently reported secondary condition endorsed by 78% of the women with functional disabilities participating in one study.  

·        Fatigue can have a profound impact on the physical, psychological, and social functioning of women with disabilities.  In one study, fatigue was found to account for 65% of the disability experienced by participants with MS.  Fatigue can also lead to unemployment and is associated with psychological distress, a sense of loss of control, and low positive affect.  

·        Despite its prevalence and its profound impact on the population, fatigue has not been well studied and has been virtually overlooked in some disabling conditions. 

·        Fatigue is associated with a number of disabling health conditions, including MS, systemic lupus erythematosus (SLE), postpolio syndrome (PPS), rheumatoid arthritis, fibromyalgia, Parkinson’s disease, stroke, and numerous other disabling conditions. 

·        Among women with MS, fatigue occurs even in those with mild disease and may be one of the initial presenting symptoms.  Research has found a majority of patients with MS considered fatigue to be either their worse or one of their worse symptoms. 

·        Similarly, a study on persons with SLE found a majority of participants described fatigue as their most disabling symptom. 

·        PPS is another disabling condition in which fatigue is a nearly universal experience.  Some investigators have argued that fatigue is the most commonly reported, most debilitating, and least studied sequelae affecting polio survivors.

·        Although similarities have been noted in mean fatigue scores across several disability groups, the causes and triggers of fatigue may differ by disability type. For example, fatigue in persons with MS appears to be exacerbated by heat and mitigated by cool temperature more often than among persons with other disabilities. 

·        Fatigue is a complex phenomenon that may result from a variety of causes, including disease pathology, decreased muscle strength and endurance, overexertion, comorbid conditions, environmental conditions, poor sleep, depression, and anxiety.

·        Most recently, investigators have begun differentiating physical and mental components of fatigue.  Because these two components appear to have different correlates (e.g., only mental fatigue is related to depression and anxiety), some have suggested that making such distinctions can have implications for the treatment of fatigue, allowing intervention strategies to be tailored to the type of fatigue experienced. 

·        Treatment for fatigue has lagged behind because of a lack of attention to this common, debilitating secondary condition.  Recently, however, some investigators have begun to address the need for effective treatment recommendations. 

o       A multidisciplinary approach to treatment of fatigue has been recommended. 

o       With regard to MS, it has been recommended that treatment begin with more cost-effective, nonpharmacologic interventions, moving to pharmacologic treatment when fatigue is severe or when individuals fail to respond to less costly strategies. 

o       Several drugs have been determined to be effective in the treatment of fatigue in MS. 

o       Other strategies that may be helpful include exercise, timed or scheduled periods of rest, making lifestyle adjustments, improving one’s sleep, and avoiding heat exposure.

·        Despite the fact that fatigue is such a common, debilitating secondary condition, there remains a dearth of literature on the causes, consequences, and effective treatments for fatigue secondary to a wide range of chronic disabling health conditions.  Some investigators attribute this to the fact that health professionals have typically focused on specific abilities without appreciating that people actually perform multiple tasks concurrently and that their impact is cumulative over time.  Clearly additional research is needed on this phenomenon that has such a profound impact on the quality of life of women with physical disabilities.

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Although women with physical disabilities are more likely to be overweight or obese, have high blood pressure, and be less physically active than non-disabled women, very little is known about their experiences with heart disease.

·        The leading cause of death in women is coronary artery disease. Having a primary disability does not exempt women from also acquiring heart disease. In fact it may be more prevalent in this population.  However, women with disabilities may face additional difficulties getting diagnosed and treated. 

o       For example, symptoms can be inappropriately attributed to the women’s disability, and heart disease left under detected and untreated. 

o       Additionally, heart disease may cause increased functional limitation in women who already may have severe limitations due to their primary disabling health conditions.

·        In the preliminary findings of a study on secondary conditions, heart disease was reported by 72 respondents in a sample of 443 women with physical disabilities.

·        Among the 881 women responding to a national survey, 5% of women with physical disabilities (n = 475) reported having heart disease, compared to only 2.5% of the women without disabilities (n = 406).

·        Although gender differences in risks for heart disease are rarely reported, some studies have reported differences by disability type. For instance, in one study the respondents with polio had more than twice the frequency of heart disease and stroke compared to those with rheumatoid arthritis. Findings from another study indicated that rheumatoid arthritis is associated with a greater risk for cardiovascular disease than osteoarthritis.

·        No research studies have been conducted on the prevention, risks, symptoms, diagnosis, and treatment of heart disease in cross-disability samples of women.  Such research has the potential to help improve the quality of life and health status of women with disabilities nationwide.

·        Clearly, there is a need for research studies designed to develop and evaluate heart disease prevention and/or self-management intervention programs for women with disabilities.

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More women with physical disabilities report being told by a medical professional that they have high blood pressure than do non-disabled women.

High blood pressure is a major risk factor for heart disease and the greatest risk factor for stroke and heart failure, and it can cause kidney damage. Problems with high blood pressure constitute a major secondary condition for people with disabilities. Although hypertension is found to be high in the general population, it may be even more prevalent in women with disabilities.

·        Women with disabilities commonly face problems with high blood pressure.

o       According to the preliminary findings of a survey on the health issues of women with physical disabilities (n = 386), nearly 1 out of 4 women indicated that they had problems with hypertension. 

o       Preliminary findings from another study indicated that more than half (56%) of a sample of women with physical disabilities (n = 443) reported problems with blood pressure.

·        In one analysis of population-based data, hypertension was more frequently reported by women with functional limitations in all age groups than among women without functional limitations.

·        Another investigation of functional limitations of women at midlife revealed that women with substantial limitations were three times more likely to report high blood pressure than those without limitations.

·        The National Heart, Lung, and Blood Institute provides clinical practice guidelines for the prevention, detection, and treatment of high blood pressure.

·        Research is needed to develop and evaluate prevention and self-management programs for hypertension among women with disabilities.

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Little is known about how the symptoms of menopause differ in women who have had mobility limitations most of their lives compared with non-disabled women.

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Osteoporosis occurs much earlier and is more severe in women with mobility limitations than in non-disabled women.

Preliminary studies clearly indicate that low bone mass---specifically osteopenia and osteoporosis---is common in women with disabilities by peripheral bone mineral density (BMD) screening. Further, the findings indicate that women with disabilities do not receive recommendations for diagnostic testing of the spine and hip and, as a result, receive no therapy to prevent or treat osteoporosis. These findings suggest that health care providers, including primary care providers and specialists, are unaware of the prevalence of low bone mass and risk for osteoporosis and osteoporotic fractures in women with disabilities. Moreover, these findings suggest that the osteoporosis risk factors for women with disabilities are either unknown or ignored.

            Risk factors associated with osteoporosis and osteoporotic fractures in these studies of women with disabilities have included low BMD, steroid use, and inadequate dietary intake of vitamin D, in addition to immobility, impaired balance and coordination, and lower extremity weakness. There is little information about the risk factors for osteoporosis in women across disabilities or clinical predictors that could be used to identify women with severe disabilities who would be candidates for osteoporosis treatment.

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Overweight and obesity are significantly more common among women with physical disabilities than among non-disabled women.

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Pain is a common secondary condition in women with spinal cord injury, multiple sclerosis, stroke, and post-polio.

·        Chronic pain has been found to impact functioning and complicate disability on many levels..   Although more research is needed, the following information summarizes what is known about the prevalence and effects of chronic pain on women with disabilities or on interventions that may help:

o       Preliminary findings from one study on women with physical disabilities reported at least an 80% prevalence rate for pain as a secondary condition for each of the following disabilities: spinal cord injury, spina bifida, post polio, cerebral palsy, neuromuscular disorders, and traumatic brain injury.  In addition, 67% of women with multiple sclerosis reported problems with pain.

o       In one qualitative study,  people with various physical disabilities (spinal cord injury, acquired amputation, and cerebral palsy) described pain as part of daily living that influences their lifestyle decisions.  Pain was further described as being experienced in multiple locations, with distinct sensations, and different implications.  Pain was also described as very personal with little understanding from family and friends.

o       A qualitative study of 18 women with physical disabilities found that pain comprised one of the major factors that impeded the ability of the women to engage in health-promoting behaviors.

o       Another study found that women with functional limitations due to a variety of chronic conditions averaged 12 secondary conditions in the past year.  These included, fatigue, immobility, physical de-conditioning, spasticity, and joint pain,, followed by depression, chronic pain, access problems, weight problems, and isolation. These secondary conditions were also found to adversely affected health status and quality of life for women with physical disabilities. 

·        Little research has examined the psychosocial impact of pain specifically on women with disabilities.  However, some research has been conducted on pain as a secondary condition in people with disabilities (majority male).

o       At a physiological level, chronic pain promotes a stress response characterized by fatigue, neuroendrocrine dysregulation, dysphoria, myalgia, and impaired mental and physical performance which can foster negative thinking and create a vicious cycle of stress and disability.

o       Most pain research has been on people with spinal cord injuries. Results show:

§         Pain has been found to result in psychological distress and limitations in activities above and beyond the impact of spinal cord injury.

§         One study found psychosocial factors (but not physiological factors) to be associated with pain severity among people with spinal cord injuries.

§         Numerous studies on people with chronic pain have found catastrophizing to be associated with increased pain and physical and psychological dysfunction.  Catastrophizing is ---(how study defines it?)  One study conducted on people with chronic pain associated with spinal cord injury (30% women) found catastrophizing to be significantly related to greater pain intensity, psychological distress, and pain-related disability.

·        Pain treatments should be evaluated for the efficacy with specific disabilities.  In some cases, medication may be contraindicated.

o       Medication to treat pain among people with disabilities can be problematic due to complications with medication for the underlying disability.

o       Many practitioners support intensive multidisciplinary (holistic – treating body, mind, and spirit) treatment approaches for pain and found this biopsychosocial approach to be the most successful (Gonzales et al., 2000; Guzman et al., 2001).  However others still hold to a biomedical perspective, focusing only on medical interventions, such as ---.

o       Aromatherapy has been suggested as a treatment for pain for people with multiple sclerosis.

o       Cognitive-behavioral therapies have proven to be effective treatment for people with chronic pain in general, and research has begun focusing on this treatment for pain among people in which pain is a secondary condition or a symptom of their primary disability.  To date no studies have addressed the gender- and disability-specific needs related to pain among women with disabilities.

§         Increased levels of self-efficacy or belief in one’s ability to cope are associated with reduced levels  of pain. Cognitive-behavioral stress management training has been shown to reduce pain and other factors indirectly via changes in self-efficacy, coping, and helplessness.

§         It is clear that a pressing need exists for the development and evaluation of a pain self-management intervention for women with disabilities, focusing on cognitive-behavioral strategies such as self-efficacy and active coping techniques.

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Respiratory problems create a serious secondary condition for women with disabilities causing problems that can result in morbidity and/or mortality.

 

·        One study on secondary conditions among women with functional limitations found 18.8% of their sample to identify respiratory problems as a secondary condition. 

·        Respiratory muscle weakness in multiple sclerosis is usually described in the advanced stage of the disease and accounts for majority of fatalities.  However, it may also occur earlier during relapse episodes and can also contribute to fatigue and increased sense of effort.

·        Respiratory complications are frequent in patients with acute cervical spinal injury (CSI).  Findings from one study suggested that the number of respiratory complications experienced during the initial acute-care hospitalization for CSI is a more important determinant of length of stay and hospital costs than level of injury.

·        As this population ages, we can anticipate an increasing need for rehabilitation hospitals that specialize in respiratory care.

·        Home mechanical ventilation (HMV) is known to be a successful therapy for chronic respiratory insufficiency, with regard to long-term survival and has demonstrated improvement in quality of life among people with neuromuscular disorders and skeletal deformities (ie, restrictive lung disease) receiving HMV. Participants receiving HMV reported good perceived health, despite their severe physical limitations.

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Many women report sleep disturbance resulting from weakened breathing muscles, pain, or overweight.

A total of 265 (60%) of the 443 women who were enrolled in a year-long study of secondary conditions in women with physical disabilities reported that sleep disturbance had been a problem in the past three months.  This prevalence is much greater than the approximate 33% found in the general population in this country.

·        Sleep disorders and disordered sleep are highly prevalent among the general U.S. population.  Insomnia alone has been estimated to affect from 20 million.  Although insomnia is the most common, other sleep disorders also described in the International Classification of Sleep Disorders (1979) such as narcolepsy and sleep apnea are less prevalent in the general population, but more common among people with disabilities. 

·        Women with disabilities may experience sleep disturbances as a result of being disabled and female.  First, sleep problems constitutes a common secondary condition among people with activity limitations. Moreover, sleep disturbance is more common among females compared to males in the United States. 

·        Various research studies have reported  sleep disturbance by:

o       34% of persons with spinal cord injury,

o       75% of those with rheumatic disease,

o       42% with sleep-disordered breathing in neuromuscular disorders, including post-polio syndrome, and

o       57% of a cross-disability group of women.

·        Psychosocial factors, not organic disease per se, are believed to contribute significantly to sleep complaints in people with paraplegia due to spinal cord injury, musculoskeletal (rheumatic) disease, and other physical disabling conditions.

·        The cause of sleep disturbance associated with primary disabilities ranges from:

o       Primary sleep disorders such as apnea or narcolepsy,

o       Secondary to psychiatric conditions such as depression or anxiety, or

o       Medical complications such as impaired breathing, medication side effects, or frequent urination. 

·        Regardless of its cause, chronic sleep disturbance may exacerbate daytime functional limitations, produce excessive daytime sleepiness and fatigue, lead to secondary injury from traffic accidents and falls, increase chronic pain, and promote emotional distress.

·        Sleep disturbance in multiple sclerosis is associated with various factors such as leg spasms, pain, immobility, and medication. 

·        People with spinal cord injury also commonly have periodic leg movements and sleep apnea.

·        Research is needed to understand and ameliorate sleep disturbance and other secondary conditions among women with disabilities.

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Women with physical disabilities have substantially higher rates of stress than non-disabled women.

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According to one report, alcohol and other drug abuse disorders tend to increase as functional limitation becomes more severe among women with disabilities. 

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Weakness is a symptom of many primary disabling conditions, such as neuromuscular disorders or paralysis, but it is also a common condition secondary to arthritis in women.

Many women with physical disabilities experience problems with weakness.

·        According to a study involving interviews on definitions and meaning of health for women with physical disabilities, those whose disabling conditions were relapsing and remitting or degenerative tended to define health in terms of conditions that affect functioning, such as weakness, pain, or energy level.

·        In one survey of 443 women with physical disabilities, 63% reported experiencing a limitation due to weakness in the past 3 months.  In fact, weakness ranked 9th in terms of severity on a list of 43 secondary and other health conditions.

·        Weakness impacts a woman’s health promoting behaviors, such as exercise and healthy diet.  For example, it may prevent some women from cooking or limits what they can cook to only those foods and cooking utensils they can lift or manipulate. 

·        Weakness is a critical issue for many women with physical disabilities.  Again, women with postpolio are at risk of developing overuse weakness when exercising the muscles most severely affected by the syndrome. 

o       It is important that persons with postpolio are provided effective and accessible exercise programs that will offer the benefits of conditioning without risking additional muscle damage.  Systems are being developed for physicians and therapists to help persons with polio use muscles that are least affected while resting the muscles that are continuing to weaken.

o       Overuse weakness is common among people with late onset manifestations of polio, and it is important that slowly progressive non-fatiguing exercise becomes as part of their rehabilitation. 

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