Summary of Funded Research on Women with Disabilities

 

 

Abuse/Violence                                              List of Acronyms

Aging                                                              Return to Symposium home page

Breast Cancer                                                 Return to CROWD home page

Disclaimer:  This is only a listing of completed and current research on the health of women with physical disabilities.  Inclusion in the list implies no judgment of the project’s quality or findings.

 
Cardiovascular Disease

Economic Outcomes

General

Girls with Disabilities

Health Promotion

Health Services

Menopause

Mental Health

Osteoporosis

Parenting

Physical Activity

Reproductive Health

Secondary Conditions

Sexuality

 

Project Title

Institution

Funding Dates & Source

Principal Investigator

Major Findings

Recommendations for Future Research

Abuse/Violence  Return to top

Violence Against Women with Disabilities

Baylor College of Medicine

1997-2001

CDC

Margaret Nosek

 

 

Patterns of Abuse: The Lived Experience of Partner Abuse in Physically Disabled Women

Villanova University College of Nursing

2000 –2001

Bristol-Myers Squibb Foundation

Linda Carman Copel

The cycle of violence model does not accurately portray the abuse experience endured by physically disabled women.  A model to reflect their experience has been proposed.

Validation of the model of abuse for women with disabilities needs to be done.

Women’s PAS Abuse Research Project

Oregon Health Sciences University

1997-2000

NIDRR

 

Laurie Powers

 

 

Reducing Risk Factors for Abuse Among Low Income Minority Women with Disabilities (3 studies)

Baylor College of Medicine

1996-1999

NIDRR

Margaret Nosek

Proj 1 & 2: get from abuse intervention kit research flyer, on abuse knowledge of rehab service providers & Abuse services by independent living centers

Proj 3: Battered women’s programs serve few women with disabilities and vary widely in their ability to serve them.

 

Women with Physical Disabilities’ Experiences of Abuse

Oregon Health and Science University

2001-2004

National Institute of Nursing Research

Dena Phillips

 

 

 

Aging   Return to top

Post-Menopausal Sequelae in Aging Women with Spinal Cord Injury

UAB

1999-2004

NIDRR

Amie B Jackson, Steven Theiss and Sarah Morgan

 

 

Management of Increasing Functional Loss in Aging Women

Baylor College of Medicine

2000-2002

NIA

Ellen Grabois

 

 

Prevalence of Medication Discrepancies in Older Women with Disabilities

Villanova University College of Nursing

2000-2001

Bristol-Myers Squibb Foundation

Janice Duffin

Vanessa Zimmerman

A sample of 100 women with disabilities over the age of 60 of low socioeconomic status (Medicaid recipients) was studied to document the rate of discrepancy between the women’s reported current medications and what their primary health care provider list as their current medications.

 

Identification and testing of strategies to increase awareness of health care providers of risks of older women with disabilities for potential adverse drug reactions; analysis of cost savings to Medicaid program as a result of interventions.

 

 

Vitamin D Deficiency Among Older Women with And without Disability

John Hopkins Medical Institution

2000

NIH

 

 

Richard Semba

found vitamin D deficiency is a common and preventable problem among older disabled women, particularly older African-American with disabilities

 

The Challenges of Change: The Midlife Health Needs of Women with Disabilities

DisAbled Women’s Network Canada

BCCEWH

Marina Morrow

 

Current Study Ongoing

Risk Factors For Physical Disability In Aging Women

Johns Hopkins University

1994-1999

NIH

Linda Fried

 

 

Women with pre-existing physical disabilities: the impact of aging.

SSHRCC/Status of Disabled Persons Secretariat

1994-1995

W. Pentland

 

 

The Missing Voices in Long-Term Policy Making: Elderly Women and Women with Disabilities

DisAbled Women’s Network Canada

BCCEWH

Jane Aronson

longitudinal qualitative study exploring the experiences of elderly women and women with disabilities who receive home care in Ontario.

Current Study Ongoing

Women Aging with a Spinal Cord Injury (funded by Ontario Neurotrauma Foundation)

School of Rehabilitation Therapy, Queen’s University

 

M. Gould

 

 

Breast Cancer  Return to top

Oregon Health Division’s Breast and Cervical Cancer Screening Program

Oregon Office on Disability and Health

1999

CDC

Ann Pobutsky

Women with disabilities in Oregon may not be getting adequate ongoing preventive screening tests

 

Cardiovascular Disease  Return to top

Cardiovascular Diseases in Women with SCI and its Effect on Participation in Community Activities

Rancho

2001-2004

NIDRR

Yaga Szlachcic

 

 

Cardiovascular Disease Risk Among Women with Disabilities: Awareness, Reported Risk Factors, and Frequency of Screening

Villanova University College of Nursing

2000-2002

Bristol-Myers Squibb Foundation

Therese Capriotti

Preliminary findings of a sample of 100 women with disabilities indicate physical inactivity, increased risk for heart disease in women with a disability, and  lack of adequate screening for CV disease. Data collection on non-disabled women of similar age is in process.

Development and testing of strategies to increase awareness among primary health care providers about CV disease risk and screening needs in women with a disability.

Economic Outcomes  Return to top

Disability and Rehabilitation Research and Related Projects: Improved Economic Outcomes for Women with Disabilities

University of Mass., Boston, TGCI

1999

NIDRR

 

 

 

General  Return to top

Improving the Health and Wellness of Women with Disabilities: Proceedings of a Symposium to Establish a Research Agenda (National Library of Medicine)

Baylor College of Medicine

2001-2004

NIH, NLM

Margaret Nosek

 

 

Improving the Health and Wellness of Women with Disabilities: A Symposium to improve a Research Agenda

Baylor College of Medicine

2001-2003

CDC

Margaret Nosek

 

 

Cost Analysis of Secondary Conditions in Disabled Women

Baylor College of Medicine

2000-2003

CDC

Margaret Nosek

 

 

Integration of Content on Women with Disabilities in Nursing Curricula

Villanova University College of Nursing

2000-2001

Bristol-Myers Squibb Foundation

Mary Anne Dolen

Suzanne Smeltzer

Gale Robinson-Smith

Data analysis is in the beginning stage. Preliminary analysis of 239 mailed questionnaires from a random national sample of schools of nursing reveals inadequate time, inadequate room in curricula, and lack of faculty expertise to address health issues of persons with disability.

Identification and testing of creative approaches to motivate health professions faculty to address health issues, including health promotion, of persons with disabilities in their educational programs.

Lifestyle and Activity Practices of Women with Disabilities

California Physical Therapy Association and California State University

2001

K. A. Curtis

Investigated the barriers to regular physical activity for women with mobility-related physical disabilities. In addition, women with physical disabilities have a lack of knowledge about general health and wellness practices.

Women with physical disabilities may benefit from a structured educational and physical activity program to address their lifestyle and activity habits.

A Comparison of Stroke Risk Factors in Men and Women with Disabilities

Villanova University College of Nursing

2001

Bristol-Myers Squibb Foundation

Janice Hinkle

Rosalind Smith

Karen Revere

A sample of 146 individuals (men and women) who identified themselves as having a disability have similar stroke risk factors to the non-disabled population.

Hypertension (HTN), the most common preventable stroke risk factor in the general population, is also prevalent in men and women in this disabled sample. Disabled men in this sample have a significantly higher rates of HTN and smoking compared to disabled women.

 

Testing of strategies to teach health care providers to include health promotion efforts for individuals with a disability that are age appropriate (such as stroke risk assessments) and not focus solely on the underlying cause of the disability.

Testing of creative health promotion efforts to reach out to disabled men and women with an emphasis on decreasing HTN and smoking.

Health Status of Women with Cerebral Palsy; Project WEALTH (Women Empowered, Aware, and Learning Through Health Education)

 

Department of Physical Medicine and Rehabilitation, State University of New York (SUNY) Health Science Center at Syracuse, NY

 

1997-2000

CDC

 

Margaret Turk

Women with mobility impairments benefit from traditional health promotion activities. Disability type influences one's perception of health. Level of social support and education predicted participation in health promoting behaviors in our study.

Barriers to participation are likely more than the traditional problems with accessibility, transportation, and child care. These "unknown barriers" should be evaluated further.

Secondary Conditions of Adults with Cerebral Palsy

Department of Physical Medicine and Rehabilitation, State University of New York (SUNY) Health Science Center at Syracuse, NY

1992-1996

CDC

Margaret Turk

Generally, women with CP are healthy, with no increased risk for any specific co-morbidity. They can anticipate modest change in motor function over time, but no dramatic loss of function. Common secondary conditions and health issues are: pain and musculoskeletal problems, bladder and bowel problems, and poor dental hygiene.

 

Impact of Disability on Women: A comparative study of Canadian and Indian women with disabilities

School of Rehabilitation Therapy, Faculty of Health Sciences, Queen’s University

 

Elizabeth John

 

 

Women with Disability: The Social Construct of Access

(Phase 1 and Phase 2)

DisAbled Women’s Network Canada

BCCEWH

Carol Bast

Questions that will be explored: What affects healthy living for women with disabilities? What impact do familial, economic, and social conditions have on the lives of women with disabilities?

Current Study Ongoing

Assessing the needs and resources of indigenous women with disabilities

San Diego State University, Interwork Institute, Rehabilitation Research and Training Center of the Pacific

NIDRR

Marshall, CA

 

 

Results of a modified BRFSS questionnaire to determine risks associated with disability

North Carolina

1999

CDC

D. Ehrenkrantz

Women with disabilities were less likely to have a clinical breast exam, mammogram, or pap smear.

 

Health behaviors of North Carolina adults with and without disabilities: Preliminary findings from the 1998 BRFSS

 

1999

CDC

K. Passaro

Women who used special equipment were less likely to have regular mammograms

 

International Forum on Women with Disabilities

National Council Disability

1997-1998 National Science Foundation

Ethel Briggs

International Leadership Forum for Women with Disabilities to be held June 15-20, 1997 in Bethesda, Maryland; follow-up to the UN 4th World Conference on Women held in Beijing in 1995. Proceedings will be made available to participants on-line.

 

Distinctive Impacts Of Arthritis For Women

University Of Michigan At Ann Arbor

1996-1997

NIH

Lois Verbrugge

 

 

study of medications, degree of mobility disablement, and access to care as risk factors for self-reported adverse drug reactions among 2,384 Medicare recipients who have mobility disablement. 

University of Iowa

CDC

Chrischilles

 

 

Meeting the Needs of Women with Disabilities: A Blueprint for Change

Berkeley Planning Associates

1994-1997

NIDRR

Ann Cupolo Freeman

Delphi Process Survey of future research needs for women with disabilities. Women with disabilities  used Participatory Action Research to identify these needs.

The top nine research topics and service needs identified were 1) Abuse and Violence, 2) Reproductive Health Services, 3) Youth Programs, 4) Substance Abuse Services, 5) Child Care Services, 6) Child Protective Services, 7) Aging Services, 8) AFDC, and 9) Adoption Services

Girls with Disabilities  Return to top

Girls With Disabilities Get SMART

Girls Incorporated

1994-1998 National Science Foundation

Heather Johnston Nicholson (current PI)
Harilyn Rousso (former PI)
Janet Greenberg (former PI)

The overall project goals is to provide girls with disabilities with access to the needed skills to persist in science and mathematics courses in school, and pursue mathematics and science careers and interests in adult life.

 

Girls with Disabilities on Line

University of Minnesota

1995-1998

National Science Foundation

 Laura C. Koch

Addresses attitudinal and educational barriers faced by girls with severe disabilities, grades K-8, in preparation for taking science, engineering, and mathematical classes; uses state-of-the-art and emerging adaptive computer technology, as well as peer training

 

Health Promotion  Return to top

Health Promotion for Women with Fibromyalgia

The University of Texas at Austin

2003-2007 National Institute of Child Health and Human Development, NIH

Alexa Stuifbergen

A sample of 160 women with FMS will be recruited to participate in a randomized clinical study to determine the effects of this wellness intervention that includes an eight week health promotion/behavior change component and 3 months of follow-up phone support.

 

Health Promotion for Women Aging with Disability

Baylor College of Medicine

2000-2003

NIDRR

Margaret Nosek

 

 

Health Promotion and Quality of Life in Chronic Illness

University of Texas at Austin

1999-2003

Alexa Stuifbergen;

Heather Becker, Gayle Timmerman, and Shelley Blozis, co-investigators

This ongoing longitudinal study includes 376 women with multiple sclerosis.  Response rates over the 7 year survey study have exceeded 85% at each mailing.  Women who reported more frequent health behaviors have significantly less accumulation of physical impairment over the initial three years of the study.

 

Wellness Intervention for Women with MS

University of Texas at Austin

1996-2000

Alexa Stuifbergen;

Heather Becker, Anne Seraphine, and Shelley Blozis, co-investigators

This randomized clinical trial examined the effects of a two-phase wellness intervention for women with MS (N=113).The intervention included lifestyle-change classes for 8 weeks and telephone follow-up for three months. The intervention group had significantly greater self-efficacy for health practices, health promoting behaviors and improved pain and mental health scores compared to the control group.

 

Barriers to Wellness Activities for Canadian Women with Physical Disabilities

Department of Physical Therapy, University of Toronto

Ontario Ministry of Health (Career Scientist Award)

Fran Odette and Karen Yoshida

Data were collected from 45 women physical, hearing, or visual disabilities in six focus groups in urban and rural Ontario, Canada. Participants represented diverse communities and ethnicities. Women reported barriers prevented them from engaging in desired wellness activities.

 

Health Promotion Interests of Women with Disabilities and Their Caregivers

Villanova University College of Nursing

1999-2001

Bristol-Myers Squibb Foundation

Vanessa Zimmerman

Suzanne Smeltzer

539 women with disabilities identified stress management, exercise, nutrition, overview of health promotion, strategies to maintain mental health and aging with a disability as health promotion topics of most interest to them.

Development and testing of educational strategies to provide health promotion information to women with disabilities and to reach those who are typically hard to reach.

Health Promotion for Women with Physical Disabilities

Baylor College of Medicine

1996-2000

NIH

Margaret Nosek

 

 

Health Promotion Intervention for Women with MS

University. of Texas at Austin

1996-2000

NIH

Alexa Stuifbergen

 

 

Health Promotion for Women with Disabilities

Temple University

1996-1999

NIH

Catherine Coyle

 

 

Exercise And Well-Being In Women With Sickle Cell Anemia

Medical College Of Georgia

1996-1999

NIH

Bernard Gutin, Kristi Woods

 

 

Wellness for Women with Polio: A Holistic Program Model

University of Michigan

1996-1999

NIH

Denise G. Tate

Positive health behavior increased as a result of this relatively short intervention

A longer holistic intervention targeted at alleviating or preventing specific secondary conditions such as obesity or fatigue may be more effective; the power of connectedness and support as well as change in self-efficacy levels could be scientifically measured as part of  future studies.

Barriers to Wellness Activities for Canadian Women with Physical Disabilities

Department of Physical Therapy, University of Toronto

 

F. Odette

Data were collected in six focus groups in urban and rural Ontario, Canada.

 

Barriers to Preventive Health Practices in Women with Spinal Cord Impairments

California State University

 

D. Persaud

A convenience sample of 28 women was recruited from community settings to participate in a qualitative investigation.

 

Preventive Healthcare in Women with Multiple Sclerosis

Hospital for Joint Diseases/Mount Sinai NYU Health, Multiple Sclerosis Care Center, and NYU Medical Center

Initiative for Women with Disabilities (Elly Hammerman)

Debra Shabas

 Women with MS do not receive adequate screening and medical preventive checkups. Approximately 50% of the women do not get regular medical checkups, 25% do not receive regular pelvic examinations, and 11% have not had a pap smear within 3-5 years.

The benefits of preventive healthcare should be stressed to women with MS, and referrals should be facilitated by neurologists. Osteoporosis prevention and screening must be made part of the medical plan for women with MS.

Health Services  Return to top

Use of screening and preventive services among women with disabilities,

Harvard Medical School

AHRQ

Lisa I. Iezzoni, M.D., M.Sc.

 

 

Preventive Healthcare in Women with Multiple Sclerosis

Hospital for Joint Diseases/Mount Sinai NYU Health, Multiple Sclerosis Care Center, and NYU Medical Center

Initiative for Women with Disabilities (Elly Hammerman)

Debra Shabas

 Women with MS do not receive adequate screening and medical preventive checkups. Approximately 50% of the women do not get regular medical checkups, 25% do not receive regular pelvic examinations, and 11% have not had a pap smear within 3-5 years.

The benefits of preventive healthcare should be stressed to women with MS, and referrals should be facilitated by neurologists. Osteoporosis prevention and screening must be made part of the medical plan for women with MS.

Menopause  Return to top

Post-Menopausal Sequelae in Aging Women with Spinal Cord Injury

University of Alabama, Birmgham

1999-2004

Amie B Jackson, MD, Steven Theiss,MD and Sarah Morgan, MD

 

 

Women with Polio: Menopause, Late Effects, Quality of Life, and Psychological Well being

University of Michigan, Department of Physical Medicine and Rehabilitation

2003

Gazette International Networking Institute- International Polio Network

Claire Kalpakjian and Denise Tate

 

 

Menopausal Concerns and Experiences of Women with Multiple Sclerosis

Villanova University College of Nursing

2000-2001

Bristol-Myers Squibb Foundation

Suzanne Smeltzer

Vanessa Zimmerman

Many in the sample of 18 women with MS were concerned about the interaction of MS and menopause but indicated that little information about the interaction was available. Women’s concerns about the interaction of MS and menopause were often dismissed by health care providers.

Examination of  the relationship of symptoms of chronic disabling conditions and menopause and effective strategies to address them.

Hormone Replacement Therapy Among Women with Disabilities

University of Texas at Austin

1999-2001

NINR

Heather Becker; Alexa Stuifbergen; Dorothy Gordon

 

 

 

University of Michigan

 

clairez@umich.edu

 

 

 

University of Michigan

 

 

 

 

Mental Health  Return to top

Depression and Rural Women with Disabilities

Baylor College of Medicine

2003-2006

NIDRR

Rosemary Hughes

 

 

Stress and Coping among Women with SCI

University of Michigan

2002-2005

NIDRR

Denise Tate

 

 

Depression Self-Management and Women with Disabilities

Baylor College of Medicine

2001-2004

NIH

Rosemary Hughes

 

 

Stress Self-Management for Women with Disabilities

Baylor College of Medicine

2001-2003

CDC

Rosemary Hughes

 

 

Disability, Social Support, and Concern for Children: Depression in Mothers with Multiple Sclerosis

University of Texas at Austin

National Institute of Nursing Research, NIH

Tracie Harrison and Alexa Stuifbergen

Sample: n=201 women with MS. The results indicate that disability and concern for children are independent predictors of depressive symptoms, and social support can partially mediate the effect of concern for children on depressive symptoms.

Appropriate support should be identified and provided by nurses caring for mothers with disabilities such as MS to decrease the depressive symptoms related to the concern they have for their children.

The Role of Catastrophizing in the Pain and Depression of Women with Fibromyalgia Syndrome

New Jersey- Robert Wood Johnson Medical School

 

Afton Hassett

Sample: n=64 women with FMS and n=30 women with rheumatoid arthritis. Regression analyses revealed that in FMS, catastrophizing as a measure of coping predicted patients’ perception of pain better than demographic variables such as age, duration of illness, and education.

 

Self-Esteem and Women with Disabilities

Baylor College of Medicine

1999-2002

NIDRR

Rosemary Hughes and Margaret Nosek

 

 

Osteoporosis  Return to top

Osteoporosis Among Women and Girls with Disabilities

Department of Physical Medicine and Rehabilitation, State University of New York (SUNY) Health Science Center at Syracuse, NY

2001-2003

CDC

Margaret Turk

 

 

Bone mineral density and osteoporosis risk in women with disabilities

Villanova University College of Nursing

1999-2001

Bristol-Myers Squibb Foundation

Suzanne Smeltzer

Vanessa Zimmerman

There is a high incidence of osteopenia and osteoporosis in women with disabilities but little attention is given to this disorder and women are not being tested or treated. In a sample of 429 women, most of whom have neurological disabilities, only 25% reported previous BMD testing, and 32% ever received a recommendation for BMD testing from health care providers.

Exploration of reasons that health care providers fail to recognize the importance of osteopenia and osteoporosis in women with disabilities.

Testing of strategies to increase detection, predictors, prevention, and treatment of osteoporosis in women with neurological and other disabilities.

Testing of osteoporosis treatment modalities in women with disabilities.

Osteoporosis Risk Factors and Bone Mineral Density in Women with MS

Villanova University College of Nursing

1999-2001

Bristol-Myers Squibb Foundation

Suzanne Smeltzer

Vanessa Zimmerman

Subsample of 142 women with MS; low BMD is common in women with MS, increasing their risk for osteoporosis and osteoporotic fractures.

Development and testing of strategies to increase knowledge about osteoporosis in women with MS and health care providers.

Reduced Muscle Uptake Of Oxygen During Exercise In Patients With Systemic Lupus Erythematosus

Department of Internal Medicine, National Kasumigaura Hospital, Ibaraki, Japan

 

M. Sakauchi

Sample: n=21 female patients with Systemic Lupus Erythematosus (SLE). Low aerobic exercise capacity of patients with SLE appeared to be mainly due to a small increase in O2 pulse. Low anaerobic threshold may explain in part why patients with SLE become easily fatigued.

 

Follow-up Study of Actions of Women with Disability Following Bone Mineral Density Screening

Villanova University College of Nursing

2000-2001

Bristol-Myers Squibb Foundation

Suzanne Smeltzer

Vanessa Zimmerman

Follow-up of 114 women with physical disabilities who underwent bone density screening and received their results revealed low level of concern to most women in study; few health care providers followed testing and treatment recommendations consistent with the NIH Consensus Statement on Osteoporosis

Identification and testing of strategies to increase the ability of women with disabilities to obtain BMD testing and treatment of osteoporosis.

Perceptions of Women with Multiple Sclerosis About Osteoporosis Follow Up

Villanova University College of Nursing

2000-2001

Bristol-Myers Squibb Foundation

Nancy C. Sharts-Hopko

Suzanne Smeltzer

Focus group participants (N=22) identified numerous strategies to help women with MS act to reduce osteoporosis risk and more effectively direct their own health care.

Development and testing of educational strategies to enable and empower women with MS to manage their health care to reduce osteoporosis risk. Identification of strategies for effective physician education in the area of osteoporosis risk reduction among women with MS.

Beliefs, Perceptions, and Practices Related to the Ability to Prevent Immobility and Fracture among Women with Multiple Sclerosis

Villanova University College of Nursing

1999-2000

Bristol-Myers Squibb Foundation

Nancy C. Sharts-Hopko

Maureen Sullivan

Of 29 women, most had some but incomplete knowledge and most were attempting to reduce osteoporosis risk; physicians had not provided guidance in most cases even when asked.

Identification of health promotion strategies that result in actions among women with MS related to osteoporosis risk reduction.

 

Osteoporosis And Disability In Life-Care Community Women

Duke University

1992-1997

NIH

Deborah Gold

 

 

Osteoporosis and Women with Disabilities

Institute of Gerontology

 

Sharon Milberger

 

 

Parenting  Return to top

Mothers with Spinal Cord Injury

Baylor College of Medicine

1995-2000

NIDRR

Margaret Nosek

 

 

Physical Activity  Return to top

African American Women and Physical Activity

Department of Disability and Human Development, University of Illinois at Chicago

1997-2001

CDC

Jim Rimmer

Results showed very low levels of exercise and general activity patterns in African American women with severe physical disabilities that may expose them to a higher risk of secondary health conditions. African American women with a physical disability are interested in becoming more active but are limited in doing so because of their inability to overcome several barriers to increased physical activity participation.

Future research should address barriers specific to the target population. More detailed qualitative and quantitative data are needed to analyze differences, if any, between the physical activity patterns of various population subgroups of individuals with disabilities.

Aerobic Fitness, Fatigue, and Physical Disability in Systemic Lupus Erythematosus

Bone and Joint Research Unit and the Dept. of Psychological Medicine, St. Bartholomew’s, Royal London School of Medicine and Dentistry and the National Sports Medicine Institute, UK

Arthritis Research Campaign, Special Trustees of St. Bartholomew's Hospital, and the British Medical Association Doris Hillier Award

Colin Tench

Patients with SLE were less fit with reduced exercise capacity, reduced muscle strength, more fatigue, and greater disability compared to sedentary controls. Sample: n=93 women with SLE, and 41 healthy but sedentary female controls.

Treatments developed to manage depression and improve aerobic fitness should be considered in the overall treatment of fatigue and disability in SLE.

Dyspnea in Ambulatory Patients with Systemic Lupus Erythematosus: Prevalence, Severity, and Correlation with Incremental Exercise Testing

Department of Medicine, Johns Hopkins University School of Medicine

 

D.B. Hellman

Dyspnea is a common and frequently disabling condition in ambulatory patients with SLE, associated with a history of lupus involvement of the lung. Dyspnea correlates highly with objective measures of exercise limitation. Sample: n=25 consecutive women.

 

Physical Performance And Cardiovascular And Metabolic Adaptation Of Elite Female Wheelchair Basketball Players In Wheelchair Ergometry And In Competition

Department of Preventive and Rehabilitative Sports Medicine, Center for Internal Medicine, the University of Freiburg, Germany

 

A. Schmid

Sample: n=13 female wheelchair basketball players and 10 female sedentary people with SCI. Wheelchair basketball is an effective and suitable sport to enhance physical performance and to induce positive physiological adaptations.

 

Pulmonary Gas Exchange And Exercise Capacity In Patients With Systemic Lupus Erythematosus

Dipartimento di Medicina Clinica, University of Rome La Sapienza, Italy

 

Silvia Forte

Sample: n=13 women with SLE and 5 age-matched controls. Reduced muscle aerobic capacity is common in SLE and is most likely because of peripheral muscle deconditioning. Increased ventilatory demand, secondary to diffuse interstitial lung disease, is not a significant contributor to the reduction in exercise tolerance.

 

Shoulder Pain In Female Wheelchair Basketball Players

Department of Physical Therapy, School of Health and Human Services, California State University, Fresno

 

Kathleen A. Curtis

Sample: n=46 female wheelchair basketball players. Shoulder and upper extremity pain was a very common problem reported by over 90% of the subjects in this study.

Prevention of pain and chronic disability in athletes who use wheelchairs should be addressed by coaches, players, and health care professionals.

Osteoarthrosis Of The Hip In Women And Its Relationship To Physical Load From Sports Activities

Department of Occupational Health, NVSO, Karolinska Hospital, Stockholm, Sweden

1991-1994

Swedish Council For Work Life Research

 

E. Vingard

Swedish women 50 to 70 years of age; n=230 women with hip replacements due to osteoarthritis and n=273 controls (randomly selected women)

 

Dance-Based Exercise Program In Rheumatoid Arthritis

Rehabilitation Institute of Quebec City, Laval University, Canada

 

L. Noreau

N=10 female participants

 

Women, Disability, and Sport and Physical Fitness Activity

Southern Illinois University at Carbondale

Department of Education

Kathleen Plesko

 

 

Reduced Muscle Uptake Of Oxygen During Exercise In Patients With Systemic Lupus Erythematosus

Department of Internal Medicine, National Kasumigaura Hospital, Ibaraki, Japan

 

Michihiro Sakauchi

Compared 2 control groups of female patients with female patients with Systemic Lupus Erythematosus (SLE). Group 1: n=40 women with various health conditions, Group 2: n=10 women with chronic anemia, and Group 3: n=21 women with SLE. Low aerobic exercise capacity of patients with SLE appeared to be mainly due to a small increase in O2 pulse. Low anaerobic threshold may explain in part why patients with SLE become easily fatigued.

 

Reproductive Health  Return to top

Access to Reproductive Health Care for Women with Spinal Cord Injury

Baylor College of Medicine

1995-2000

NIDRR

Margaret Nosek

 

 

A Curriculum for Training Physician Assistants in Primary and Reproductive Health Care for Women with Spinal Cord Injury

Baylor College of Medicine

1996-1997

PVA/ETF

Margaret Nosek

 

 

A Curriculum for Training Physicians in Reproductive Health Care for Women with Physical Disabilities

Baylor College of Medicine

1996

NIDRR

Margaret Nosek

 

 

Reproductive Health Care Experiences Of             Women With Physical Impairments

The University of Texas at Austin

1996 University Research Institute

M. Tinkle,

A. Stuifbergen, &

H. Becker

 

 

A Curriculum for Training Physicians in Reproductive Health Care for Women with Spinal Cord Injuries

Baylor College of Medicine

1995-1996

PVA/ETF

Margaret Nosek

 

 

Secondary Conditions  Return to top

Cost of Secondary Conditions in Women

Baylor College of Medicine

2001-2004

CDC

Margaret Nosek

 

 

Preventing Secondary Conditions for Women with Mobility Impairments

University of Kansas

1997-2000

CDC

Glen White

 

 

Sexuality  Return to top

A Doubled-Blind, Placebo

Controlled Study of the Efficacy of Sildenafil in Improving Sexual

Responsiveness in Women with SCI.

University of Miami

2001-2004

NIDRR

 

Marca Sipski

 

 

Physiologic Effects Of SCI On Female Sexual Response

Mount Sinai School Of Medicine Of NYU

1997-2000

NIH

Marca Sipski

 

 

Psychosocial Behaviors Of Women with Disabilities

Baylor College Of Medicine

1992-1996

NIH

Margaret Nosek

 

 

Physiologic Effects Of Spinal Cord Injury On Women

Kessler Institute For Rehabilitation,

1992-1994

NIH

Marca Sipski

 

 

 

List of Acronyms:

 

AHRQ—Agency for Healthcare Research and Quality

BCCEWH—British Columbia Centre of Excellence for Women’s Health