Abuse/Violence List of Acronyms
Aging Return to
Symposium home page
Breast Cancer Return to CROWD home page
Disclaimer: This is only a listing of completed and current
research on the health of women with physical disabilities. Inclusion in the list implies no judgment
of the project’s quality or findings.
Cardiovascular Disease
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Project Title |
Institution |
Funding Dates & Source |
Principal Investigator |
Major Findings |
Recommendations for Future Research |
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Abuse/Violence Return to top |
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Violence
Against Women with Disabilities |
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1997-2001 CDC |
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Patterns
of Abuse: The Lived Experience of Partner Abuse in Physically Disabled Women |
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2000
–2001 Bristol-Myers
Squibb Foundation |
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The cycle
of violence model does not accurately portray the abuse experience endured by
physically disabled women. A model to
reflect their experience has been proposed. |
Validation
of the model of abuse for women with disabilities needs to be done. |
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Women’s
PAS Abuse Research Project |
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1997-2000 NIDRR |
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Reducing
Risk Factors for Abuse Among Low Income Minority Women with Disabilities (3
studies) |
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1996-1999 NIDRR |
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Proj 1 & 2: get
from abuse intervention kit research flyer, on abuse knowledge of rehab
service providers & Abuse services by independent living centers Proj 3: Battered
women’s programs serve few women with disabilities and vary widely in their
ability to serve them. |
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Women with Physical
Disabilities’ Experiences of Abuse |
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2001-2004 National |
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Aging
Return
to top |
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Post-Menopausal
Sequelae in Aging Women with Spinal Cord Injury |
UAB |
1999-2004 NIDRR |
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Management
of Increasing Functional Loss in Aging Women |
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2000-2002 NIA |
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Prevalence
of Medication Discrepancies in Older Women with Disabilities |
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2000-2001 Bristol-Myers
Squibb Foundation |
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A
sample of 100 women with disabilities over the age of 60 of low socioeconomic
status (Medicaid recipients) was studied to document the rate of discrepancy
between the women’s reported current medications and what their primary
health care provider list as their current medications. |
Identification
and testing of strategies to increase awareness of health care providers of risks
of older women with disabilities for potential adverse drug reactions;
analysis of cost savings to Medicaid program as a result of interventions. |
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Vitamin D Deficiency Among Older Women with And without
Disability |
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2000 NIH
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found vitamin D deficiency is a common and preventable problem
among older disabled women, particularly older African-American with
disabilities |
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The Challenges of Change: The Midlife Health Needs of Women
with Disabilities |
DisAbled Women’s Network |
BCCEWH |
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Current Study Ongoing |
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Risk Factors For Physical Disability In Aging Women |
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1994-1999 NIH |
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Women with pre-existing physical disabilities: the
impact of aging. |
SSHRCC/Status of Disabled Persons Secretariat |
1994-1995 |
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The Missing Voices in Long-Term Policy Making: Elderly
Women and Women with Disabilities |
DisAbled Women’s Network |
BCCEWH |
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longitudinal qualitative study exploring the
experiences of elderly women and women with disabilities who receive home
care in |
Current Study Ongoing |
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Women Aging with a Spinal Cord Injury (funded by
Ontario Neurotrauma Foundation) |
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Breast Cancer Return to top |
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Oregon Health Division’s Breast and Cervical Cancer Screening
Program |
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1999 CDC |
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Women
with disabilities in |
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Cardiovascular
Disease Return to top |
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Cardiovascular
Diseases in Women with SCI and its Effect on Participation in Community
Activities |
Rancho |
2001-2004 NIDRR |
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Cardiovascular
Disease Risk Among Women with Disabilities: Awareness, Reported Risk Factors,
and Frequency of Screening |
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2000-2002 Bristol-Myers
Squibb Foundation |
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Preliminary
findings of a sample of 100 women with disabilities indicate physical
inactivity, increased risk for heart disease in women with a disability, and lack of
adequate screening for CV disease. Data collection on non-disabled women of
similar age is in process. |
Development
and testing of strategies to increase awareness among primary health care
providers about CV disease risk and screening needs in women with a
disability. |
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Economic
Outcomes Return to top |
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Disability and Rehabilitation Research and Related
Projects: Improved Economic Outcomes for Women with Disabilities |
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1999 NIDRR |
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General Return to top |
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Improving
the Health and Wellness of Women with Disabilities: Proceedings of a
Symposium to Establish a Research Agenda (National Library of Medicine) |
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2001-2004 NIH, NLM |
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Improving
the Health and Wellness of Women with Disabilities: A Symposium to improve a
Research Agenda |
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2001-2003 CDC |
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Cost
Analysis of Secondary Conditions in Disabled Women |
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2000-2003 CDC |
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Integration
of Content on Women with Disabilities in Nursing Curricula |
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2000-2001 Bristol-Myers
Squibb Foundation |
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Data
analysis is in the beginning stage. Preliminary analysis of 239 mailed
questionnaires from a random national sample of schools of nursing reveals
inadequate time, inadequate room in curricula, and lack of faculty expertise
to address health issues of persons with disability. |
Identification
and testing of creative approaches to motivate health professions faculty to
address health issues, including health promotion, of persons with
disabilities in their educational programs. |
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Lifestyle and Activity Practices of Women with
Disabilities |
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2001 |
K. |
Investigated the barriers to regular physical activity
for women with mobility-related physical disabilities. In addition, women
with physical disabilities have a lack of knowledge about general health and
wellness practices. |
Women with physical disabilities may benefit from a
structured educational and physical activity program to address their
lifestyle and activity habits. |
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A
Comparison of Stroke Risk Factors in Men and Women with Disabilities |
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2001 Bristol-Myers
Squibb Foundation |
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A
sample of 146 individuals (men and women) who identified themselves as having
a disability have similar stroke risk factors to the non-disabled population.
Hypertension
(HTN), the most common preventable stroke risk
factor in the general population, is also prevalent in men and women in this
disabled sample. Disabled men in this sample have a significantly higher
rates of HTN and smoking compared to disabled
women. |
Testing
of strategies to teach health care providers to include health promotion
efforts for individuals with a disability that are age appropriate (such as
stroke risk assessments) and not focus solely on the underlying cause of the
disability. Testing
of creative health promotion efforts to reach out to disabled men and women
with an emphasis on decreasing HTN and smoking. |
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Health Status of Women
with Cerebral Palsy; Project WEALTH (Women Empowered, Aware, and Learning
Through Health Education) |
Department of Physical
Medicine and Rehabilitation, State |
1997-2000 CDC |
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Women with mobility
impairments benefit from traditional health promotion activities. Disability
type influences one's perception of health. Level of social support and
education predicted participation in health promoting behaviors in our study.
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Barriers to
participation are likely more than the traditional problems with
accessibility, transportation, and child care. These "unknown
barriers" should be evaluated further. |
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Secondary Conditions of
Adults with Cerebral Palsy |
Department of Physical
Medicine and Rehabilitation, State |
1992-1996 CDC |
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Generally, women with
CP are healthy, with no increased risk for any specific co-morbidity. They
can anticipate modest change in motor function over time, but no dramatic
loss of function. Common secondary conditions and health issues are: pain and
musculoskeletal problems, bladder and bowel problems, and poor dental
hygiene. |
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Impact of Disability on Women: A comparative study of
Canadian and Indian women with disabilities |
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Women with Disability: The Social Construct of Access (Phase 1 and Phase 2) |
DisAbled Women’s Network |
BCCEWH |
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Questions that will be explored: What affects healthy
living for women with disabilities? What impact do familial, economic, and
social conditions have on the lives of women with disabilities? |
Current Study Ongoing |
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Assessing the needs and
resources of indigenous women with disabilities |
San Diego State
University, Interwork Institute, Rehabilitation
Research and |
NIDRR |
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Results of a modified BRFSS
questionnaire to determine risks associated with disability |
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1999 CDC |
D. Ehrenkrantz |
Women
with disabilities were less likely to have a clinical breast exam, mammogram,
or pap smear. |
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Health behaviors of |
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1999 CDC |
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Women
who used special equipment were less likely to have regular mammograms |
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International Forum on
Women with Disabilities |
National Council
Disability |
1997-1998 National
Science Foundation |
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International
Leadership Forum for Women with Disabilities to be held |
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Distinctive Impacts Of Arthritis For Women |
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1996-1997 NIH |
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study
of medications, degree of mobility disablement, and access to care as risk
factors for self-reported adverse drug reactions among 2,384 Medicare
recipients who have mobility disablement.
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CDC |
Chrischilles |
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Meeting the Needs of Women with Disabilities: A
Blueprint for Change |
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1994-1997 NIDRR |
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Delphi Process Survey of future research needs for
women with disabilities. Women with disabilities used Participatory Action Research to
identify these needs. |
The top nine research topics and service needs
identified were 1) Abuse and Violence, 2) Reproductive Health Services, 3)
Youth Programs, 4) Substance Abuse Services, 5) Child Care Services, 6) Child
Protective Services, 7) Aging Services, 8) AFDC, and 9) Adoption Services |
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Girls with Disabilities
Return
to top |
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Girls With Disabilities
Get SMART |
Girls Incorporated |
1994-1998 National
Science Foundation |
Heather Johnston
Nicholson (current PI) |
The overall project
goals is to provide girls with disabilities with access to the needed skills
to persist in science and mathematics courses in school, and pursue
mathematics and science careers and interests in adult life. |
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Girls with Disabilities
on Line |
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1995-1998 National Science
Foundation |
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Addresses attitudinal and
educational barriers faced by girls with severe disabilities, grades K-8, in
preparation for taking science, engineering, and mathematical classes; uses
state-of-the-art and emerging adaptive computer technology, as well as peer
training |
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Health
Promotion Return to top |
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Health Promotion for
Women with Fibromyalgia |
The |
2003-2007 National
Institute of Child Health and Human Development, NIH |
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A sample of 160 women
with FMS will be recruited to participate in a randomized clinical study to
determine the effects of this wellness intervention that includes an eight
week health promotion/behavior change component and 3 months of follow-up
phone support. |
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Health
Promotion for Women Aging with Disability |
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2000-2003 NIDRR |
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Health Promotion and
Quality of Life in Chronic Illness |
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1999-2003 |
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This ongoing
longitudinal study includes 376 women with multiple sclerosis. Response
rates over the 7 year survey study have exceeded 85% at each mailing.
Women who reported more frequent health behaviors have significantly less
accumulation of physical impairment over the initial three years of the
study. |
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Wellness Intervention
for Women with MS |
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1996-2000 |
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This randomized
clinical trial examined the effects of a two-phase wellness intervention for
women with MS (N=113).The intervention included lifestyle-change classes for
8 weeks and telephone follow-up for three months. The intervention group had
significantly greater self-efficacy for health practices, health promoting
behaviors and improved pain and mental health scores compared to the control
group. |
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Barriers to Wellness
Activities for Canadian Women with Physical Disabilities |
Department of Physical
Therapy, |
Ontario Ministry of
Health (Career Scientist Award) |
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Data were collected
from 45 women physical, hearing, or visual disabilities in six focus groups
in urban and rural |
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Health
Promotion Interests of Women with Disabilities and Their Caregivers |
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1999-2001 Bristol-Myers
Squibb Foundation |
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539 women
with disabilities identified stress management, exercise, nutrition, overview
of health promotion, strategies to maintain mental health and aging with a
disability as health promotion topics of most interest to them. |
Development
and testing of educational strategies to provide health promotion information
to women with disabilities and to reach those who are typically hard to
reach. |
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Health Promotion for Women with Physical Disabilities |
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1996-2000 NIH |
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Health Promotion Intervention for Women with MS |
University. of |
1996-2000 NIH |
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Health Promotion for Women with Disabilities |
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1996-1999 NIH |
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Exercise And Well-Being In Women With Sickle Cell Anemia |
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1996-1999 NIH |
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Wellness for Women with Polio: A Holistic Program Model |
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1996-1999 NIH |
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Positive health behavior increased as a result of this
relatively short intervention |
A longer holistic intervention targeted at alleviating or
preventing specific secondary conditions such as obesity or fatigue may be
more effective; the power of connectedness and support as well as change in
self-efficacy levels could be scientifically measured as part of future studies. |
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Barriers to Wellness
Activities for Canadian Women with Physical Disabilities |
Department of Physical
Therapy, |
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Data were collected in
six focus groups in urban and rural |
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Barriers to Preventive
Health Practices in Women with Spinal Cord Impairments |
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|
D. Persaud |
A convenience sample of
28 women was recruited from community settings to participate in a
qualitative investigation. |
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Preventive Healthcare
in Women with Multiple Sclerosis |
Hospital for Joint
Diseases/Mount |
Initiative for Women
with Disabilities (Elly Hammerman) |
|
Women with MS do not receive adequate
screening and medical preventive checkups. Approximately 50% of the women do not
get regular medical checkups, 25% do not receive regular pelvic examinations,
and 11% have not had a pap smear within 3-5 years. |
The benefits of
preventive healthcare should be stressed to women with MS, and referrals
should be facilitated by neurologists. Osteoporosis prevention and screening
must be made part of the medical plan for women with MS. |
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Health Services Return to top |
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Use of screening and preventive services among women with
disabilities, |
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AHRQ |
Lisa I. Iezzoni,
M.D., M.Sc. |
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Preventive Healthcare
in Women with Multiple Sclerosis |
Hospital for Joint
Diseases/Mount |
Initiative for Women
with Disabilities (Elly Hammerman) |
|
Women with MS do not receive adequate
screening and medical preventive checkups. Approximately 50% of the women do
not get regular medical checkups, 25% do not receive regular pelvic examinations,
and 11% have not had a pap smear within 3-5 years. |
The benefits of
preventive healthcare should be stressed to women with MS, and referrals
should be facilitated by neurologists. Osteoporosis prevention and screening
must be made part of the medical plan for women with MS. |
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Menopause Return to top |
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Post-Menopausal Sequelae in Aging
Women with Spinal Cord Injury |
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1999-2004 |
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Women with Polio:
Menopause, Late Effects, Quality of Life, and Psychological Well being |
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2003 Gazette International Networking
Institute- International Polio Network |
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Menopausal
Concerns and Experiences of Women with Multiple Sclerosis |
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2000-2001 Bristol-Myers
Squibb Foundation |
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Many
in the sample of 18 women with MS were concerned about the interaction of MS
and menopause but indicated that little information about the interaction was
available. Women’s concerns about the interaction of MS and menopause were
often dismissed by health care providers. |
Examination
of the relationship of symptoms of
chronic disabling conditions and menopause and effective strategies to
address them. |
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Hormone Replacement Therapy Among Women with Disabilities |
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1999-2001 NINR |
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clairez@umich.edu |
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Mental
Health Return to top |
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Depression and Rural Women with Disabilities |
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2003-2006 NIDRR |
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Stress and Coping among Women with SCI |
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2002-2005 NIDRR |
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Depression Self-Management and Women with Disabilities |
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2001-2004 NIH |
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Stress
Self-Management for Women with Disabilities |
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2001-2003 CDC |
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Disability, Social
Support, and Concern for Children: Depression in Mothers with Multiple
Sclerosis |
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National |
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Sample: n=201 women
with MS. The results indicate that disability and concern for children are
independent predictors of depressive symptoms, and social support can partially
mediate the effect of concern for children on depressive symptoms. |
Appropriate support
should be identified and provided by nurses caring for mothers with
disabilities such as MS to decrease the depressive symptoms related to the
concern they have for their children. |
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The Role of Catastrophizing in the Pain and Depression of Women with Fibromyalgia Syndrome |
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Sample: n=64 women with
FMS and n=30 women with rheumatoid arthritis. Regression analyses revealed
that in FMS, catastrophizing as a measure of coping
predicted patients’ perception of pain better than demographic variables such
as age, duration of illness, and education. |
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Self-Esteem
and Women with Disabilities |
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1999-2002 NIDRR |
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Osteoporosis Return to top |
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Osteoporosis Among
Women and Girls with Disabilities |
Department of Physical
Medicine and Rehabilitation, State |
2001-2003 CDC |
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Bone
mineral density and osteoporosis risk in women with disabilities |
|
1999-2001 Bristol-Myers
Squibb Foundation |
|
There
is a high incidence of osteopenia and osteoporosis
in women with disabilities but little attention is given to this disorder and
women are not being tested or treated. In a sample of 429 women, most of whom
have neurological disabilities, only 25% reported previous BMD testing, and 32% ever received a recommendation for BMD testing from health care providers. |
Exploration
of reasons that health care providers fail to recognize the importance of osteopenia and osteoporosis in women with disabilities. Testing
of strategies to increase detection, predictors, prevention, and treatment of
osteoporosis in women with neurological and other disabilities. Testing
of osteoporosis treatment modalities in women with disabilities. |
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Osteoporosis
Risk Factors and Bone Mineral Density in Women with MS |
|
1999-2001 Bristol-Myers
Squibb Foundation |
|
Subsample of
142 women with MS; low BMD is common in women with
MS, increasing their risk for osteoporosis and osteoporotic
fractures. |
Development
and testing of strategies to increase knowledge about osteoporosis in women
with MS and health care providers. |
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Reduced Muscle Uptake
Of Oxygen During Exercise In Patients With Systemic Lupus Erythematosus |
Department of Internal
Medicine, |
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Sample: n=21 female
patients with Systemic Lupus Erythematosus (SLE). Low aerobic exercise capacity of patients with SLE appeared to be mainly due to a small increase in O2
pulse. Low anaerobic threshold may explain in part why patients with SLE become easily fatigued. |
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Follow-up
Study of Actions of Women with Disability Following Bone Mineral Density
Screening |
|
2000-2001 Bristol-Myers
Squibb Foundation |
|
Follow-up
of 114 women with physical disabilities who underwent bone density screening
and received their results revealed low level of concern to most women in
study; few health care providers followed testing and treatment
recommendations consistent with the NIH Consensus
Statement on Osteoporosis |
Identification
and testing of strategies to increase the ability of women with disabilities
to obtain BMD testing and treatment of
osteoporosis. |
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Perceptions
of Women with Multiple Sclerosis About Osteoporosis Follow Up |
|
2000-2001 Bristol-Myers
Squibb Foundation |
|
Focus
group participants (N=22) identified numerous strategies to help women with
MS act to reduce osteoporosis risk and more effectively direct their own
health care. |
Development
and testing of educational strategies to enable and empower women with MS to
manage their health care to reduce osteoporosis risk. Identification of
strategies for effective physician education in the area of osteoporosis risk
reduction among women with MS. |
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|
Beliefs,
Perceptions, and Practices Related to the Ability to Prevent Immobility and
Fracture among Women with Multiple Sclerosis |
|
1999-2000 Bristol-Myers
Squibb Foundation |
|
Of 29
women, most had some but incomplete knowledge and most were attempting to
reduce osteoporosis risk; physicians had not provided guidance in most cases
even when asked. |
Identification
of health promotion strategies that result in actions among women with MS
related to osteoporosis risk reduction. |
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Osteoporosis And Disability In Life-Care Community Women |
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1992-1997 NIH |
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Osteoporosis and Women with Disabilities |
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Parenting Return to top |
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Mothers with Spinal Cord Injury |
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1995-2000 NIDRR |
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Physical Activity
Return
to top |
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|
African American Women
and Physical Activity |
Department of
Disability and Human Development, |
1997-2001 CDC |
|
Results showed very low
levels of exercise and general activity patterns in African American women
with severe physical disabilities that may expose them to a higher risk of
secondary health conditions. African American women with a physical
disability are interested in becoming more active but are limited in doing so
because of their inability to overcome several barriers to increased physical
activity participation. |
Future research should
address barriers specific to the target population. More detailed qualitative
and quantitative data are needed to analyze differences, if any, between the
physical activity patterns of various population subgroups of individuals
with disabilities. |
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|
Aerobic Fitness,
Fatigue, and Physical Disability in Systemic Lupus Erythematosus |
Bone and Joint Research
Unit and the Dept. of Psychological Medicine, St. Bartholomew’s, Royal London
School of Medicine and Dentistry and the National Sports Medicine Institute, |
Arthritis Research
Campaign, Special Trustees of St. Bartholomew's Hospital, and the British
Medical Association |
|
Patients
with SLE were less fit with reduced exercise
capacity, reduced muscle strength, more fatigue, and greater disability
compared to sedentary controls. Sample: n=93 women with SLE,
and 41 healthy but sedentary female controls. |
Treatments
developed to manage depression and improve aerobic fitness should be
considered in the overall treatment of fatigue and disability in SLE. |
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|
Dyspnea in Ambulatory Patients with Systemic Lupus Erythematosus: Prevalence, Severity, and Correlation with
Incremental Exercise Testing |
Department of Medicine,
|
|
|
Dyspnea is a common and frequently disabling condition in ambulatory
patients with SLE, associated with a history of
lupus involvement of the lung. Dyspnea correlates
highly with objective measures of exercise limitation. Sample: n=25
consecutive women. |
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Physical Performance And
Cardiovascular And Metabolic Adaptation Of Elite Female Wheelchair Basketball
Players In Wheelchair Ergometry And In Competition |
Department of
Preventive and Rehabilitative Sports Medicine, Center for Internal Medicine,
the |
|
|
Sample: n=13 female
wheelchair basketball players and 10 female sedentary people with SCI.
Wheelchair basketball is an effective and suitable sport to enhance physical
performance and to induce positive physiological adaptations. |
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|
Pulmonary Gas Exchange
And Exercise Capacity In Patients With Systemic Lupus Erythematosus |
Dipartimento di Medicina Clinica, University of Rome La Sapienza, Italy |
|
|
Sample: n=13 women with
SLE and 5 age-matched controls. Reduced muscle
aerobic capacity is common in SLE and is most
likely because of peripheral muscle deconditioning.
Increased ventilatory demand, secondary to diffuse
interstitial lung disease, is not a significant contributor to the reduction
in exercise tolerance. |
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|
Shoulder Pain In Female
Wheelchair Basketball Players |
Department of Physical
Therapy, |
|
|
Sample: n=46 female
wheelchair basketball players. Shoulder and upper extremity pain was a very
common problem reported by over 90% of the subjects in this study. |
Prevention of pain and
chronic disability in athletes who use wheelchairs should be addressed by
coaches, players, and health care professionals. |
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|
Osteoarthrosis Of The Hip In Women And Its Relationship To Physical Load
From Sports Activities |
Department of
Occupational Health, NVSO, |
1991-1994 Swedish Council For
Work Life Research |
|
Swedish women 50 to 70
years of age; n=230 women with hip replacements due to osteoarthritis and
n=273 controls (randomly selected women) |
|
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Dance-Based Exercise Program
In Rheumatoid Arthritis |
Rehabilitation
Institute of |
|
|
N=10 female
participants |
|
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Women, Disability, and
Sport and Physical Fitness Activity |
Southern |
Department of Education |
|
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|
Reduced Muscle Uptake
Of Oxygen During Exercise In Patients With Systemic Lupus Erythematosus |
Department of Internal
Medicine, |
|
|
Compared 2 control
groups of female patients with female patients with Systemic Lupus Erythematosus (SLE). Group 1:
n=40 women with various health conditions, Group 2: n=10 women with chronic
anemia, and Group 3: n=21 women with SLE. Low
aerobic exercise capacity of patients with SLE
appeared to be mainly due to a small increase in O2 pulse. Low anaerobic
threshold may explain in part why patients with SLE
become easily fatigued. |
|
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Reproductive Health
Return
to top |
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|
Access to Reproductive Health Care for Women with
Spinal Cord Injury |
|
1995-2000 NIDRR |
|
|
|
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|
A Curriculum for Training Physician Assistants in
Primary and Reproductive Health Care for Women with Spinal Cord Injury |
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1996-1997 PVA/ETF |
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A Curriculum for Training Physicians in Reproductive
Health Care for Women with Physical Disabilities |
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1996 NIDRR |
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Reproductive Health
Care Experiences Of
Women With Physical Impairments |
The |
1996 University
Research Institute |
M. Tinkle, A. Stuifbergen,
& |
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A Curriculum for Training Physicians in Reproductive
Health Care for Women with Spinal Cord Injuries |
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1995-1996 PVA/ETF |
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Secondary
Conditions Return to top |
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Cost
of Secondary Conditions in Women |
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2001-2004 CDC |
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Preventing
Secondary Conditions for Women with Mobility Impairments |
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1997-2000 CDC |
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Sexuality Return to top |
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A Doubled-Blind, Placebo Controlled Study of the Efficacy of Sildenafil in Improving Sexual Responsiveness in Women with SCI. |
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2001-2004 NIDRR |
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Physiologic Effects Of SCI On Female Sexual Response |
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1997-2000 NIH |
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Psychosocial Behaviors Of Women with Disabilities |
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1992-1996 NIH |
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Physiologic Effects Of Spinal Cord Injury On Women |
Kessler Institute For Rehabilitation, |
1992-1994 NIH |
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AHRQ—Agency
for Healthcare Research and Quality
BCCEWH—British
Columbia Centre of Excellence for Women’s Health